Resources

SUPPORT

Lewy Body Dementia Resource Center
The only live national Helpline for LBD in the U.S. 365 days a year:
516-218-2026 or 833-LBD-LINE
Local and national support groups, information in seven languages, a vast
number of resources including LBD neurologists and geriatricians.

Alzheimer’s Foundation of America
866-232-8484
Helpline, support, services, and education nationwide for all dementias.

CaringKind
646-744-2900
Helpline for all dementias, an extensive network of support groups and education
programs, and a wanderer’s safety program.

Lewy Body Dementia Association
800-539-9767
Helpline, support groups, education, and research nationwide.

National Institute on Aging
800-438-4380
NIA offers a free publication called Lewy Body Dementia: Information for
Patients, Families, and Professionals, Pub #23-AG-7907

PODCASTS

Lewy Body Roller Coaster Podcast
Hear about the ups and downs and twists and turns of Lewy Body Dementia from
Lewy body patients and their families.

Lewy Body Life
This podcast was created to help care partners, family and friends understand
and navigate the often complex and unpredictable Lewy Body Dementia (LBD)
journey.